Assisted Suicide
I recently watched Better Off Dead? a BBC documentary authored by actor and disability rights activist Liz Carr. It raises valid concerns and questions about the repercussions of the Assisted Dying Bill, a proposed law to legalise Assisted Suicide in England and Wales, currently in Lords Committee Stage (April 2026). I decided to draft my own conceptual framework to develop and encourage my own thinking around the topics raised. This is not a legal document.
I recognise this is a deeply sensitive subject that touches on personal values, lived experience, and strong convictions for many people — and rightly so; what follows is not a polished argument or a settled position, but an honest attempt to think out loud for myself, and I share it only in the hope it might help others do the same.
"A terminally ill adult with confirmed mental capacity may request medically assisted suicide — provided the decision is entirely their own, voluntary, recorded, and free from all coercion."
A Do Not Resuscitate (DNR) order must be in place. The request must come from the patient alone — repeated, uncoerced, and documented.
A Do Not Resuscitate order may only be placed at the patient's own explicit, recorded request. A doctor may never assign a DNR against a patient's stated wishes. To do so is not medical judgment — it is a decision about whether a life is worth saving, and that belongs only to the person whose life it is.
Where a patient cannot write or speak — whether due to disability, illness, or cognitive impairment — a written record alone is not a reasonable benchmark. The following mechanisms must be recognised as equally valid means of recording a patient's expressed wish:
- A witnessed verbal statement, recorded on video or audio by an independent party
- Communication through an established assistive technology or AAC device
- A formally witnessed non-verbal expression — such as consistent and deliberate responses to yes/no questions — documented by at least two independent healthcare professionals
- A legally appointed advocate or lasting power of attorney acting on the patient's previously expressed and documented wishes — not on their own judgment
Every person registering a DNR preference should be able to choose from a clearly defined set of treatment preference categories so their wish is recorded precisely and cannot be misinterpreted in an emergency. A trained facilitator — not a doctor — should guide this conversation. The patient's choice should be recorded and stored in a recognised system and available to all medical professionals so that wishes cannot be misinterpreted or overridden in an emergency.
Important note: Great Britain already has a centralised, national Blood Donor and Transplant Register, which is accessible to medical professionals, so adding a specific DNR Declaration function to its records seems reasonable and very feasible. However it is worth acknowledging that the UK is four nations and some have devolved health powers. Any law of this kind would likely apply only to England, or require separate legislative processes in Scotland, Wales, and Northern Ireland. This complexity does not make the proposal unworkable — but it is an important consideration for implementation.
Every person registering a DNR preference should be able to choose from a clearly defined set of treatment preference categories so their wish is recorded precisely and cannot be misinterpreted in an emergency. A trained facilitator — not a doctor — should guide this conversation.
I have not made an explicit DNR declaration. Resuscitation decisions are at the discretion of medical professionals.
In the absence of an explicit declaration, medical professionals will use their clinical judgment to decide whether to attempt resuscitation, in accordance with best practice guidelines and the patient's best interests as they understand them.
Category 0 is the recognised default for anyone who has not yet made a declaration. It is not a choice — it is the absence of one. Every person is encouraged to make an explicit declaration so that their wishes are known and cannot be misinterpreted or overridden in an emergency.
My proposal: Category 0 should be the automatic opt-in for every person registered with the NHS — recorded as part of the national Blood Donor Register, which already holds individual records accessible to medical professionals in an emergency. A DNR preference declaration (Categories 1–3) would then be a deliberate, active upgrade from Category 0, made by the patient at any time through the same system.
Do everything possible to keep me alive.
Attempt resuscitation in all circumstances. I want all available medical interventions used to keep me alive, regardless of my condition or prognosis.
Attempt resuscitation only if I have a reasonable chance of recovering enough to communicate my own wishes.
Do not resuscitate if medical assessment confirms I would permanently lose the ability to express myself — verbally, non-verbally, or through assistive technology. Do not resuscitate if I would survive only on permanent life-sustaining machines with no realistic prospect of removal. In all other situations, attempt resuscitation and provide appropriate medical treatment.
Do not attempt to resuscitate me under any circumstances.
Keep me comfortable and free from pain. I do not want any intervention whose primary purpose is to restart my heart or extend my life.
This category is specifically aligned with Gate 3 (a recorded request for medically assisted suicide) and Gate 5 of this framework. Selecting Category 3 on its own does not constitute an assisted suicide request — it is a separate, independent decision about resuscitation that any person may make at any time.
These categories must be defined in primary legislation and maintained by a standing medical panel. Selection must always follow a facilitated conversation with a trained, independent advocate — not a doctor with a clinical interest in the outcome. The conversation matters as much as the form.
My proposal — integrate with the national Blood Donor Register: Rather than creating an entirely new national infrastructure, this DNR preference system should be built into the existing national Blood Donor Register — a system already held by NHS Blood and Transplant, already linked to individual NHS records, and already accessible to medical professionals in emergencies. Every NHS-registered person would be automatically enrolled at Category 0 (no declaration). Moving to Categories 1, 2, or 3 would be a deliberate, patient-initiated action through the same portal — online, via GP, or through a trained facilitator. This avoids building a parallel system from scratch, uses trusted infrastructure, and keeps all critical patient preferences in one place.
Changing your category
A patient may change their declared category at any time, for any reason, without explanation or justification. To change a declaration the patient must notify their GP or registered healthcare provider in writing, or through any of the accessible communication methods recognised under Gate 5. The change takes effect immediately upon receipt. Once confirmed on the patient's record by the GP or registered healthcare provider, it is binding — and must be reflected in any centralised register without delay. A previous category is never reinstated automatically — only the most recently recorded declaration is valid. No medical professional, family member, or legal representative may challenge, delay, or override a patient's decision to change their category.
"Assisted Dying" is a deliberate softening of language that reduces public scrutiny. The accurate term is Assisted Suicide. If we cannot name the act accurately, we cannot debate it honestly — and if we cannot debate it honestly, we cannot build a law that holds.
"Terminally ill" must also be precisely defined in law. Vague language is where scope creep begins. A working definition:
The law should name a clearly defined list of qualifying terminal illnesses so there is no ambiguity or legal scope creep. Each qualifying illness automatically defines eligibility, it does not require or predict prognosis timelines. In line with the autonomy principle — the individual is sovereign — only the individual defines whether this choice is right for them and what timeline is right for them.
This list is illustrative, not exhaustive. The final list must be defined and maintained by a standing medical panel, reviewed regularly, and enacted through primary legislation. Inclusion on the list does not automatically qualify a patient — all five gates must still be met.
An open question: This list is anchored around terminal prognosis and capacity to consent. However, there is a separate and harder category of conditions where the primary concern is progressive loss of bodily function and dignity — rather than death or cognitive decline alone. Conditions such as advanced Multiple Sclerosis (MS), Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), Locked-in Syndrome, and severe treatment-resistant epilepsy with progressive brain damage may all cause profound and permanent suffering with no prospect of improvement — yet would not currently qualify under this list. Whether and how such conditions should be recognised is a question this framework does not yet resolve, and one that any standing medical panel must carefully consider. It is also precisely the kind of question that, if answered too broadly, risks becoming the first step on the very slippery slope that this conceptual framework exists to highlight and guard against.
Assisted suicide is in no way a replacement for palliative care. This framework does not argue that the right to die makes the right to live comfortably any less important. Critics of assisted dying legislation often argue that if palliative care were properly funded and universally excellent, this debate would become unnecessary. That is a legitimate point and it deserves a direct response.
The honest answer is: palliative care is imperfect, and even the best palliative care cannot always resolve every form of suffering — physical, psychological, or existential. Some patients, even when receiving excellent care, will still want control over the manner and timing of their own death. That is not a failure of palliative care. It is an expression of autonomy that palliative care, by its nature, cannot provide.
This framework calls for both: the right to excellent palliative care and the right to choose assisted suicide within a tightly bounded law. These are not competing positions — they are complementary ones. Investing in palliative care and legislating for assisted suicide are not either/or choices. A society that genuinely respects its most vulnerable members must pursue both simultaneously.
This framework cannot and does not seek to govern freedom of speech, artistic expression, journalism, or public debate — the right to free speech is not restricted here.
It does, however, acknowledge that the most vulnerable people in society — including the elderly, disabled people, those with long-term conditions, and those dependent on others for their care — are disproportionately subject to cultural narratives in film, media, and public discourse that frame their lives as burdens, their suffering as undignified, and their deaths as merciful or inevitable.
We must ensure that no person in these groups ever finds themselves being murdered, euthanised, coerced, or pressurised into a decision about their own death — whether by family, medical professionals, financial systems, or the quiet weight of a society that has decided, implicitly or explicitly, that they would be better off dead.
The anti-coercion provisions in this framework, and the equality protection above, exist in direct response to that risk. Robust safeguards are not bureaucracy — they are the difference between a law that protects people and one that is used against them.
| Country | Terminal only | Terminal illness timeline | Disability excluded | Mental illness excluded | Adults 18+ only | Coercion criminalised | DNR register reliability | ||||||||||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
My Proposal This framework (as above) | ✔ | ✔ None required | ✔ | ✔ | ✘ (Gate 4 for under-18) | ✔ | ⚠ My Proposal | ||||||||||||||||||||||||||
My Proposed Framework — a conceptual ethical framework by @fellowcreative, April 2026
Status: This is a conceptual ethical framework for debate — not a legal document. It was created by @fellowcreative to encourage thinking around the topics explored in the OU/BBC documentary Better Off Dead? (2024, Liz Carr), compiled with the help of AI (Claude Sonnet 4.6). It may contain factual errors — please comment to help identify any. | |||||||||||||||||||||||||||||||||
UK 🇬🇧 In progress — Lords 2026 | ✔ | 6 months | ✔ | ✔ | ✔ | ⚠ Partial | 2/10 | ||||||||||||||||||||||||||
United Kingdom 🇬🇧 (England & Wales only) — Terminally Ill Adults (End of Life) Bill, introduced October 2024 by Kim Leadbeater MP. Currently in Lords committee stage, April 2026. Applies to England and Wales only.
DNR register (2/10): England has no national DNR register. Decisions are recorded on fragmented, locally-varied paper or electronic forms held within individual NHS trusts. The burden falls on the patient to carry their own paperwork — in an emergency, an ambulance crew may have no way of knowing a DNR exists. A doctor can assign a DNACPR without the patient's consent, provided they inform them. During the Covid-19 pandemic, blanket DNACPRs were applied to care home residents and people with learning disabilities without individual assessment — a practice NHS England subsequently described as unlawful. The absence of a centralised, patient-controlled register is a critical gap: without it, Gate 5 of this framework cannot be reliably enforced or verified. Verdict: The UK bill is broadly aligned with My Proposed Framework on the most critical points — terminal illness only, 6-month prognosis, adults 18+, two-doctor assessment, and a multi-disciplinary review panel. The meaningful gaps are: no requirement for a doctor with a prior relationship with the patient, coercion by a third party not explicitly criminalised, no DNR provision, and the continued use of the term "Assisted Dying" rather than "Assisted Suicide." The Lords committee stage is actively debating many of these safeguard gaps — the final bill may address some of them. View the bill on Parliament.uk → | |||||||||||||||||||||||||||||||||
Oregon 🇺🇸 Closest match | ✔ | 6 months | ✔ | ✔ | ✔ | ✔ | 5/10 | ||||||||||||||||||||||||||
Oregon 🇺🇸 — Death with Dignity Act 1997
DNR register (5/10): Oregon operates a POLST (Physician Orders for Life-Sustaining Treatment) system — a portable, standardised medical order that travels with the patient across care settings. It is more robust than England's approach and Oregon maintains a statewide electronic POLST registry. However it is not a full national register, and patient wishes can still be missed if the form is not immediately to hand in an emergency. Verdict: Oregon is the closest single-country model to this framework. The terminal illness boundary has held for nearly 30 years without significant expansion — the strongest available evidence that a hard line can be sustained in practice. | |||||||||||||||||||||||||||||||||
Australia 🇦🇺 Closest match | ✔ | 6 months / 12 months neurodegenerative | ✔ | ✔ | ✔ | ✔ | 4/10 | ||||||||||||||||||||||||||
Australia 🇦🇺 — Voluntary Assisted Dying Acts 2019–2023 (all 6 states)
DNR register (4/10): Australia's advance care planning system varies by state with no unified national database. Most states support advance care planning documents but these are not guaranteed to be accessible across all care settings or providers in an emergency. A patient's end-of-life wishes could be missed if they are treated outside their home state or by a provider without access to their local records. Verdict: Australia's state-by-state approach is a well-designed conservative model with strong safeguards — particularly the requirement that patients initiate the request and make three separate requests over time. The terminal illness boundary has held firmly. The main gap versus this framework is the absence of a prior-relationship requirement for assessing doctors. | |||||||||||||||||||||||||||||||||
New Zealand 🇳🇿 Broadly aligned, gaps | ✔ | 6 months | ✔ | ✔ | ✔ | ⚠ Not explicit | 4/10 | ||||||||||||||||||||||||||
New Zealand 🇳🇿 — End of Life Choice Act 2019, in force November 2021
DNR register (2/10): New Zealand supports advance care planning and has a standardised Advance Care Plan document, but there is no centralised national DNR register. Records are held locally by GPs or hospitals and are not guaranteed to be accessible across all care settings. A patient's expressed wish not to be resuscitated could go unrecognised in an emergency if they are treated by a provider who does not have access to their records. This is a meaningful gap in a framework where Gate 5 requires a DNR to be reliably on record. Verdict: New Zealand is well-designed and holds the terminal illness boundary, but has meaningful gaps — particularly that coercion is not explicitly criminalised, only one doctor needs to verify voluntary intent, and there is no minimum waiting period. These are precisely the details that matter in practice. | |||||||||||||||||||||||||||||||||
Canada 🇨🇦 Significant scope creep | ✘ Removed 2021 | ✔ None required | ✘ Disability included | ⚠ Delayed to 2027 | ✔ | ⚠ Concerns raised | 2/10 | ||||||||||||||||||||||||||
Canada 🇨🇦 — Medical Assistance in Dying (MAID), C-14 2016, expanded by C-7 2021
DNR register (2/10): Canada has no national DNR database. The system is managed province by province with no unified standard — a CBC News investigation specifically highlighted Ontario's lack of a database for DNR documents. In practice, patients are often required to carry physical paperwork. Where socioeconomic deprivation has been cited as a driver of MAID requests, the absence of a robust DNR register compounds the concern that end-of-life decisions are not being made freely and on the patient's own terms — a fundamental gap in patient protection. Verdict: Canada is the primary cautionary tale. Beginning with terminal illness in 2016, it removed that requirement entirely by 2021. The framework proposed here would be incompatible with Canada's current law on several critical points — most importantly the removal of the terminal illness requirement and the inclusion of disability as a qualifying condition. | |||||||||||||||||||||||||||||||||
Belgium 🇧🇪 Significantly broader | ✘ | ✔ None required | ✘ | ✘ | ✘ Minors included | ✔ | 7/10 | ||||||||||||||||||||||||||
Belgium 🇧🇪 — Act on Euthanasia 2002, amended 2014 to include minors of any age
DNR register (2/10): Belgium has the most developed system among the countries reviewed. Citizens can register an advance euthanasia declaration with their municipal administration; it is added to the Federal Public Health Service's national database and is accessible to physicians. The declaration remains valid indefinitely and can be revoked at any time. Digitalisation of the process has been underway since 2025. However, this register covers advance euthanasia declarations specifically — it is not a general DNR register. Standard resuscitation preferences outside the euthanasia process are not covered by the same national infrastructure. Verdict: Belgium has moved far beyond terminal illness — psychiatric illness, chronic disability, and dementia through advance directives all qualify. This is precisely the trajectory this framework is designed to prevent. Belgium is the European cautionary tale, in the same way Canada is the Commonwealth one. | |||||||||||||||||||||||||||||||||
Netherlands 🇳🇱 Significantly broader | ✘ | ✔ None required | ✘ | ✘ | ✘ From age 12 | ✔ | 4/10 | ||||||||||||||||||||||||||
Netherlands 🇳🇱 — Termination of Life on Request and Assisted Suicide Act 2002
DNR register (2/10): The Netherlands legally recognises advance directives — including written requests to withhold resuscitation — but there is no centralised national register. Documents are typically held by GPs or kept by patients themselves. The Dutch system relies heavily on the doctor-patient relationship to ensure wishes are known and respected, which works well in planned care settings but creates real risk in emergencies where the treating team may have no prior knowledge of the patient's wishes. The lack of a national register is a gap that undermines the principle that a patient's expressed wish to refuse resuscitation should always be honoured. Verdict: The Netherlands operates the world's most expansive euthanasia regime for adults. The absence of a terminal illness requirement and the inclusion of children from age 12 places it entirely outside the boundaries proposed here. It represents the furthest point of expansion that a Western democracy has reached. | |||||||||||||||||||||||||||||||||
Switzerland 🇨🇭 Most permissive globally | ✘ | ✔ None required | ✘ | ⚠ Varies by org. | ✔ | ✘ No formal law | 1/10 | ||||||||||||||||||||||||||
Switzerland 🇨🇭 — Swiss Criminal Code Art. 115 (1942) — no dedicated national legislation
DNR register (2/10): Switzerland has no state-administered DNR register of any kind. Assisted dying is operated entirely through private non-profit organisations (Dignitas, EXIT, Pegasos) under their own internal processes. There is no national oversight body, no centralised database, and no requirement that a patient's resuscitation wishes be formally recorded or accessible across care settings. In a country where end-of-life decisions are already made outside formal state structures, the absence of any DNR infrastructure means a patient's right to refuse resuscitation is entirely dependent on the goodwill of the organisations and individuals involved — with no independent verification possible. Verdict: Switzerland's model is the most permissive in the world — not because of active legislation but because of the absence of it. Private organisations with no state mandate, open to anyone internationally, with no terminal illness requirement. It is the polar opposite of the bounded, transparent framework proposed here. | |||||||||||||||||||||||||||||||||
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